Finding out that your child has been diagnosed with epilepsy can bring a variety of emotions. Parents may not know where to turn to find support or information about the disease. The Epilepsy Foundation of Michigan, located in Southfield, is an organization that seeks to provide that support and information to families and the local epilepsy community. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. It’s president, Brianna Romines, explained, “We want to see an end to epilepsy. Our ultimate vision is a world without epilepsy; lives free from seizures.”
What is epilepsy?
Epilepsy is the general term for a variety of neurological conditions characterized by recurrent, unprovoked seizures. A seizure is a brief disturbance in the electrical activity of the brain that causes temporary changes in movement, awareness, feelings, behavior, or other bodily functions. Epilepsy is the fourth most common neurological disorder in the United States. And it is estimated that 30% of people with epilepsy, in the state of Michigan, are children. Therefore, we estimate at least 30,000 children in Michigan have epilepsy.
One way the Epilepsy Foundation of Michigan fulfills their mission is by providing a variety of resources for families and children. The goal of these resources is to empower individuals and families with seizure management tools. All services and resources are available to anyone living in Michigan.
As Romines explained, “We want to connect people with epilepsy to someone in our organization as early as possible in their epilepsy journey. We truly feel it is an honor and duty to be a part of that journey and help families in their quest to best manage their epilepsy.”
Services available from the Epilepsy Foundation of Michigan
- Here for You Helpline. If you have questions about epilepsy or its consequences, Education Specialists will help give answers. Call the Toll-Free number 800-377-6226.
- Learn & Share Conference Calls. The conference calls are a strategy to give information about epilepsy and gives opportunities to share experiences. The next call is on December 5, 2018 from 6-7:30pm with Alexandra Shaw, MD, on the topic, “Childhood Epilepsy Syndromes: Diagnosis, Treatment, and Prognosis.” Interested individuals can participate in monthly Learn & Share Conference Calls by calling and entering the conference ID. To get the call information visit epilepsymichigan.org
- Wellness & Epilepsy Conference. November 10 from 8am-4pm at the VisTaTech Center at SchoolCraft College in Livonia. A Kids Conference Day Camp will also be held during the conference for children whose caregivers are attending the conference. Sign up at epilepsymichigan.org
- Summer Camps, Seizure First Aid, and Rescue Medication Training are resources along with many others.
Visit their website at epilepsymichigan.org to find out more about the organization and receive the support your family may need to move forward positively.
Canton’s 16th Annual Turkey Trot 5K
Thursday, November 22 | 8am
Summit on the Park | 46000 Summit Parkway, Canton
The course winds through Heritage Park &
Pheasant Run Golf Course in Canton.
5K Run- $25 | 1 Mile Run/Walk- $15
All proceeds support the Epilepsy Foundation of Michigan
Sign Up at epilepsymichigan.org